Monthly Archives: May 2015

Kingston Hospital – What has happened to it?

I have had a number of reasons to interface with Kingston Hospital recently. I used to slate St Georges Hospital in Tooting a lot but Kingston is fast taking over as the laughing stock of the NHS in South West London. The place is full of people who cannot do their jobs properly. I was written to after an appointment and the member of staff in question said that I agreed to something when in fact I had not! It gets even better. On a previous occasion a consultant who I swear was a seventh day Adventist mixed up his consultation with me to include several way out religious references which I found rather uncomfortable. I also have evidence of this hospital botching a number of operations and giving false advice to patients including myself. I have evidence also of staff in the Emergency Department lying on police statements on more than one occasion. If you complain to the trust they ask you to fill in a diversity questionnaire before they will deal with the complaint. A complaint is a complaint regardless of ethnic origin or any other component of diversity and this to me shows that the trust does not take complaints seriously. The chief Executive was voted as one of the most influential lesbians in the NHS. It is my opinion that she uses this as a smokescreen for crappy management. Furthermore in my opinion she should not be in post and I have said this previously on more than one occasion on these pages. It has gone so far that with the state of my health I am grateful that my own GP has agreed with me that everything Kingston have been asked to do should be re visited by another NHS trust. Being on these premises is a highly uncomfortable experience. I thought it would take an awful lot to depose St Georges Hospital of their top spot as the laughing stock of the NHS in South West London but they have risen to the top spot much in the same way as Manchester United Football Club have fallen from their own grace and lofty heights. I know of a large number of property developers that could have an awful lot of fun with the site on which Kingston Hospital sits and this would in my opinion be a good thing for the local community and for South West London at large. In my opinion avoid this place at all costs.

I wish I could stop blogging about the Labour Party

Last week I told you all about the flakey email software that the Labour party was using and what I had done with it. You can read all about that here. But it gets better. I checked my Spam folder earlier and found this little gem: Screenshot 2015-05-13 09.39.35 This had me falling off my chair laughing so hard, its unbelievable! A video was taken and no i’m not going to share it on youtube! No wonder the labour party have imploded with stuff like this coming out. You would think they would check these things! Enough for now. I have work to do!  

The Mobile Phone Industry

In 2004 I bought a small mobile phone business which was very succesful and which I sold 2 years later. I then subsequently bought 3 more mobile phone businesses! Last week my private office disposed of my last remaining asset in the industry – a well performing mobile phone price comparison website. This is due to streamlining my business interests. I would like to take this opportunity to thank the industry for accommodating me over the past 11 years. It has been hard work but also it has been fun, rewarding and profitable. I do feel a twinge of regret about leaving the industry but take with me fond memories of the good times and even the not so good times!

Better Late Than Never

Please allow me to take this opportunity to apologise to the people of Morley and Outwood near Leeds. It has taken me so long to thank you for depriving Ed Balls of a return to London as your MP. For what you have done I am eternally grateful. I would also like to thank you for the opportunity to indulge in a champagne breakfast to celebrate the fact that Ed lost his seat! A good champagne breakfast is not something I get to enjoy very often! Once again thank you!

Croydon Labour Party

About three months ago. I started getting a large volume of e-mails from the Labour Party candidate for Croydon. Don’t ask me how they got my details. I don’t live in the area and I hate the concrete hell hole that is croydon with a passion 🙂 Anyway they asked me to sign up for various things. Their mailing list software is very flakey. So I have been able to sign up using the same email address under the following names.

  • Ed Milliband is a C**T
  • Tony Blair F***s George Bush up the A***

And my favourite

  • Ed Balls is a gaylord

Since then I have been invited to:

  • Watch a labour candidate kiss a baby’s head
  • Visit a lesbian drop in centre to see the work of the local labour party
  • Numerous volunteer evenings
  • and The opening of an envelope!

This is to all of the names I have used. I think its pretty funny that a potential Labour MP writes to Ed Milliband is a C**t and invites him to a lesbian drop in centre! Its daft and its an absolute shambles! What does this say about the Labour party. Well it says a few things to me. 1. They don’t deserve to be in power because they talk complete crap to those that aren’t listeniong and 2. that they don’t deserve to win Croydon. If they don’t know who their constituents are and what their concerns are they cannot feasibly represent them. I do hope the tories win Croydon tonight. Here is a little picture from my mailing list antics!labour2  

I played life’s health lottery and lost!

My friends and family often ask me how I contract and what is Fibromyalgia, Myalgic Encephalopathy and Chronic Fatigue Syndrome. It’s like asking what’s the meaning of life! Is so complicated that I decided to write how it effected me instead.

I played life’s health lottery and lost! I was diagnosed with Fibromyalgia, Myalgic Encephalopathy and Chronic Fatigue Syndrome (FMS, CFS/ME) after a long period of going back and forth to the doctors. You didn’t know how sick I was, you called me a hypochondriac behind my back. I hope by reading this it will give you an understanding into my world.

My life has changed dramatically, I don’t really understand it myself, so I will try my best to explain to you how my body has changed and how some things that have never affected me before do now.

Below is just a very short view into part of my world.

FMS is not the latest craze in diseases. In fact, it isn’t a disease at all. It’s known as chronic rheumatism, myalgia and fibrosis. Unlike diseases, syndromes do not have a known cause, but they do have a specific set of signs and symptoms which, unfortunately for the patient, take place together. Other syndromes in this little group include rheumatoid arthritis and lupus.

The many physical and emotional problems associated with FMS are NOT psychological in origin. Trust me, this is not an “all in your head” disorder.

Fibromyalgia is a common condition characterized by severe long-term pain and tender points in joints, muscles, tendons, and other soft tissues. Fibromyalgia has also been linked to fatigue, morning stiffness, sleep problems, headaches, numbness in hands and feet, depression the list goes on and on.

I think I can pin point when this could have started. Thinking back it must have been my 2 months stint in St Georges Hospital in 2013 when I had a perforated bowl. The consultants say that this kind of trauma can lead to Fibromyalgia.

My pain is not caused by inflammation. I work a fulltime job with my pain, I don’t know what each day will bring as I don’t know where my pain will be i.e. Today it is in my shoulder, but tomorrow it may be in my legs or even in my arms/hands. Sometimes I feel as if it`s my whole body. My pain is believed to be caused by improper signals sent to the brain. It is not well understood, but it is real.

My fatigue – I am sometimes not merely tired, I am in a state of exhaustion. I may want to go out and do normal things, like going to the cinema, or the pub or just going for a walk, but I can’t. Please do not take this personally, it isn’t because I don’t want to. I am, most likely, paying the price for stressing my muscles beyond their capability.

My forgetfulness – Those of us who suffer from it call it fibrofog. I may not remember what I promised to do for you, even though you told me just seconds ago. We make a plan of action to get me through the day, remembering to think 10 steps ahead, but guess what, the fibrofog sometimes won’t let me do that.

My sensitivities – A number of things affect me but mostly odours and loud or high-pitched noises. FMS has been called the “aggravating everything disorder”. Loud bangs or unexpected noises make me jump, babies crying make me get up and leave a restaurant. Strong food smells make me want to be sick and then leave me with a headache. I really don’t stand it as these things have never bothered me before and it really frustrates me at times.

My intolerance – My internal thermostat is broken and can’t be fixed. I can’t stand heat or humidity. My hair is constantly wet because I sweat all the time, this is so embarrassing so please don’t point this out to me, trust me, I already know. Please don’t worry if I shake uncontrollably when it’s cold. I can’t tolerate the cold either, in fact it makes my pain worse when it’s cold. As I said, my internal thermostat is broken, it’s not my fault.

My depression – Yes, there are days when I would rather stay in bed or in the flat, pain can cause depression. Your concern and understanding is touching and is appreciated, yet snide remarks are not called for or welcomed. I will improve, I don’t know when, it might be something little that will bring me out of it. It’s not your fault and it’s not mine.

My sleepless nights – I don’t know how to switch my brain off, I have 100 and 1 things going around and around in my head, I worry about the slightest thing and lay in bed at night thinking about them.

Sleepy days – Some days I feel so tired, my body feels like lead, my whole body aches, I have no energy, even though I have been in bed all night, when I wake up I just want to go back to bed again, please understand it is not my choice, the choice has been taken away from me.

My stress – My body cannot handle stress. Stress makes my symptoms worse and can incapacitate me completely. I try to avoid stress but stress will not always leave me alone.

My weight – I may be overweight, but believe me, it is not by choice. My appetite is broken, and I’m struggling to cope with it, if only there was a magic pill. I don’t like my body like this and I can’t help the fact that I crave food all the time, I try my best but my best is not always good enough.

My good days – If you see me smiling and functioning normally, don’t assume I am well. I suffer from a chronic pain and fatigue illness with no cure. I can have my good days or weeks. In fact, the good days are what keep me going. I try to do what I can as I never know when the next flare will return.

My medication – I have had to try several cocktails of many different medications to help me get through the day, so please bear with me if I seem out of sorts, the meds cause all types of symptoms, i.e. sickness, headaches, drowsy, heart palpitations. Some meds can take up to 4 weeks to kick in but it only takes a few days for the side effects to kick in.

Cravings – Please don’t think I am being greedy, it’s not my fault it’s the side effects of my meds. I try to resist but sometimes it gives me pleasure to eat that biscuit in the cupboard, I try to have more control over the cravings and to eat healthy snacks but you always see me with my hand in the cookie jar.

Clumsy – I know there are days when you think I am cumbersome, I don’t want to be like this but my legs feel like they have been set in concrete and my hands painfully cramp up. Not my choice.

Dinner- The pain in my hands and legs don’t always allow me to prepare your dinner, this might seem a small thing to you but it’s a big thing to me. I love looking after you and preparing dinner for you, but it’s the pain stopping me. If I stand up for too long my legs scream out in pain and I have to go and sit down, I feel so useless.

I hope this gives you a little understanding into my world and how I have to cope on a daily basis with constant pain.

The end of a long journey and the start of a new chapter

So, here I am, 2 years later, alive and kicking . . . . Well almost!

My journey has taken me through some of the toughest times of my life but I came through it, what I thought was unscathed . . . . How wrong was I!

I now have CFS/ME, sever Fibromyalgia and rotary cuff syndrome . . . . Joy!

It’s been tough getting the correct cocktail of drugs and treatment but I think we’re almost there.

I’m writing this blog to help myself and to help anyone else out there.

I’m one of the lucky ones, how so I can hear you say, well, I’m lucky enough to have private medical insurance and was diagnosed and treated quickly, but for a lot of people out there, they struggle to get a diagnosis, but don’t give up. Keep going back to your doctors, get a history built up and don’t give in.

I hope you will enjoy my blog and I hope it will help some people as previous blogs have helped me.